<?xml version="1.0" encoding="UTF-8"?><rss xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:atom="http://www.w3.org/2005/Atom" version="2.0"><channel><title><![CDATA[Tarlov Cyst Society]]></title><description><![CDATA[Supporting and Empowering Those Affected by Tarlov Cysts]]></description><link>https://www.tarlovcystsociety.com/blog</link><generator>RSS for Node</generator><lastBuildDate>Fri, 14 Aug 2026 04:02:59 GMT</lastBuildDate><atom:link href="https://www.tarlovcystsociety.org/blog-feed.xml" rel="self" type="application/rss+xml"/><item><title><![CDATA[Behind The Tarlov Cyst Society: The Story Behind the Organization]]></title><description><![CDATA[When people visit the Tarlov Cyst Society website, they often see educational articles, research updates, physician information, patient resources, and advocacy campaigns. What they don't always see is the person working behind the scenes to help make it all happen—or the questions that guide every decision we make.]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cyst-society-founder-the-story-behind-the-organization</link><guid isPermaLink="false">6a2ad6eb44c7bef1d02a76fc</guid><pubDate>Thu, 11 Jun 2026 17:22:40 GMT</pubDate><enclosure url="http://youtube.com/shorts/tcsXP1ek740" length="0" type="video"/><dc:creator></dc:creator></item><item><title><![CDATA[Tarlov Cysts and Interstitial Cystitis: Is There a Connection?]]></title><description><![CDATA[Many people diagnosed with Interstitial Cystitis spend years searching for answers about chronic bladder pain, urinary urgency, pelvic pressure, and painful sitting. What many patients don’t realize is that some of these symptoms may overlap with symptomatic Tarlov Cyst Disease.

]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cysts-and-interstitial-cystitis-is-there-a-connection</link><guid isPermaLink="false">6a11c4be58e6754d67c6cd41</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Pain Management]]></category><category><![CDATA[Self Advocacy]]></category><category><![CDATA[Medical Practitioners]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[Diagnose Symptomatic Tarlov Cysts]]></category><category><![CDATA[Comorbidities]]></category><pubDate>Sat, 23 May 2026 16:24:44 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/11062b_1927534a3d0746a0a765f47cea227686~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Tarlov Cyst Surgical Care Now Available in Indonesia]]></title><description><![CDATA[The Tarlov Cyst Society has identified a spine surgeon in Indonesia who is actively treating patients with symptomatic Tarlov Cysts, marking a potential expansion of access to care in a region where options have historically been difficult to find. This development signals that Tarlov Cyst care is now available in Indonesia for patients seeking informed treatment options.]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cyst-care-available-in-indonesia</link><guid isPermaLink="false">69efc7ded00855f52b1ee849</guid><category><![CDATA[Self Advocacy]]></category><category><![CDATA[Medical Practitioners]]></category><category><![CDATA[Surgery]]></category><category><![CDATA[Tarlov Cyst Treatment]]></category><category><![CDATA[Society Updates]]></category><pubDate>Mon, 27 Apr 2026 21:04:45 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_cac9b905153b478f8c59590fddb77e55~mv2.png/v1/fit/w_1000,h_768,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[A Urologist’s Perspective on Pelvic Pain and Tarlov Cysts–Related Symptoms]]></title><description><![CDATA[People living with Tarlov Cyst Disease often hear the same frustrating message: “Your symptoms don’t fit neatly into one box.” “Your imaging doesn’t explain your pain.” “This must be pelvic floor, bladder, or anxiety-related.” That’s why a recent interview published by UroToday deserves attention from our community. In this interview , Dr. Elise De — a urologist with extensive expertise in pelvic pain — openly acknowledges something Tarlov cyst patients have known for years: Pelvic pain can...]]></description><link>https://www.tarlovcystsociety.com/post/urologists-perspective-on-pelvic-pain-and-tarlov-cysts</link><guid isPermaLink="false">6944583ea79f8c9ba2afb2e4</guid><pubDate>Thu, 18 Dec 2025 20:16:34 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_0e095d81d246488fbe6a81c85c58306e~mv2.webp/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Introducing the Tarlov Cyst Disease Education Kit: Now available at the Society!!]]></title><description><![CDATA[When clinicians understand what they’re looking at — when they see the diagnostic criteria, the comorbidities, the nerve-root involvement, the surgical outcomes, and the prevalence numbers — the conversation tone changes.]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cyst-disease-education-kit-now-available-at-the-society</link><guid isPermaLink="false">6924948a8ec905647bd7c077</guid><category><![CDATA[Self Advocacy]]></category><category><![CDATA[Medical Practitioners]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[Tarlov Cyst Disease Research]]></category><category><![CDATA[Society Updates]]></category><pubDate>Tue, 25 Nov 2025 17:42:10 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_867f09d903e34c798400f5655ea08ec9~mv2.jpg/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Tarlov Cysts and Sexual Dysfunction: A Multidisciplinary Breakthrough in Care]]></title><description><![CDATA[Dr. Shashank Coorapati and an international team of experts in sexual medicine, urology, neurophysiology, and spine surgery developed a multidisciplinary diagnostic and surgical protocol to evaluate and treat patients suffering from Tarlov Cysts and Sexual Dysfunction.

]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cysts-and-sexual-dysfunction-a-multidisciplinary-breakthrough-in-care</link><guid isPermaLink="false">6918cde13b31092b8bb0551e</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Pain Management]]></category><category><![CDATA[Self Advocacy]]></category><category><![CDATA[Medical Practitioners]]></category><category><![CDATA[Tarlov Cyst Treatment]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[Diagnose Symptomatic Tarlov Cysts]]></category><category><![CDATA[Tarlov Cyst Disease Research]]></category><category><![CDATA[Patient Stories]]></category><category><![CDATA[Comorbidities]]></category><pubDate>Sat, 15 Nov 2025 19:37:36 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_641f341adfe84bbcb3f0dec0b118b497~mv2.jpeg/v1/fit/w_275,h_183,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Tarlov Cyst Treatment Options: A Research-Based Overview]]></title><description><![CDATA[For years, patients were told there was “no treatment available for Tarlov Cysts.” However, published research now documents a range of approaches, from conservative management to minimally invasive interventions and microsurgic]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cyst-treatment-options-a-research-based-overview</link><guid isPermaLink="false">68dc3ebc699baab58d95023b</guid><category><![CDATA[Tarlov Cyst Treatment]]></category><category><![CDATA[General Knowledge]]></category><category><![CDATA[Pain Management]]></category><category><![CDATA[Medical Practitioners]]></category><category><![CDATA[Surgery]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[Tarlov Cyst Disease Research]]></category><pubDate>Tue, 30 Sep 2025 22:19:00 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_2967805162294a898b43988d432f5a5b~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Tarlov Cyst Symptoms by Nerve Root: Understanding How Cyst Location Shapes Experience]]></title><description><![CDATA[When it comes to understanding Tarlov Cyst Disease, one of the most confusing—and often overlooked—aspects is how symptoms can vary depending on where the cysts are located. These fluid-filled sacs form on nerve roots along the spine, and their impact depends on which nerves they’re pressing against or damaging.]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cyst-symptoms-by-nerve-root-understanding-how-location-shapes-experience</link><guid isPermaLink="false">68793230036729d520b39cb5</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Pain Management]]></category><category><![CDATA[Self Advocacy]]></category><category><![CDATA[Medical Practitioners]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[Diagnose Symptomatic Tarlov Cysts]]></category><category><![CDATA[Tarlov Cyst Disease Research]]></category><pubDate>Sun, 20 Jul 2025 16:08:48 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_74fd91fa56b5449db38b6239f6cecac3~mv2.jpg/v1/fit/w_800,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Tarlov Cyst Multisystemic Associations]]></title><description><![CDATA[Living with Tarlov Cyst Disease can feel like you're living within a puzzle full of missing pieces. For many patients, symptoms reach far beyond low back or pelvic pain. Burning limbs, dizziness, brain fog, bowel or bladder dysfunction, and vision changes may seem unrelated—until you look deeper.]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cyst-multisystemic-associations</link><guid isPermaLink="false">68694248313711f211f45eed</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Self Advocacy]]></category><category><![CDATA[Medical Practitioners]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[Diagnose Symptomatic Tarlov Cysts]]></category><category><![CDATA[Tarlov Cyst Disease Research]]></category><pubDate>Sat, 05 Jul 2025 16:19:39 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_9e598e0282b747fcbb729ed7c0f716fd~mv2.png/v1/fit/w_1000,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[New Research Reveals: Chronic Pelvic and Sexual Symptoms Point to Tarlov Cysts]]></title><description><![CDATA[n a compelling new publication, Dr. Abdelali Yahia details the case of a 38-year-old woman who endured years of bladder dysfunction, perineal numbness, and sexual impairment. ]]></description><link>https://www.tarlovcystsociety.com/post/new-research-reveals-chronic-pelvic-and-sexual-symptoms-point-to-tarlov-cysts</link><guid isPermaLink="false">68640a7a5a8ba1bc5a4f2ba4</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Medical Practitioners]]></category><category><![CDATA[Surgery]]></category><category><![CDATA[Tarlov Cyst Treatment]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[Tarlov Cyst Disease Research]]></category><pubDate>Tue, 01 Jul 2025 18:03:42 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_67cff52ce76c45faaa9dc74b814286e0~mv2.png/v1/fit/w_986,h_574,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Tarlov Cyst Disease: A Rare Case of Spontaneous Regression]]></title><description><![CDATA[Spontaneous regression of Tarlov cysts is extremely rare. According to the authors, only one previous case has been documented in medical literature.]]></description><link>https://www.tarlovcystsociety.com/post/spontaneous-regression-of-tarlov-cysts-regress-a-rare-case-of-unexpected-healing</link><guid isPermaLink="false">68602304a5354756409dc2e5</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Self Advocacy]]></category><category><![CDATA[Medical Practitioners]]></category><category><![CDATA[Surgery]]></category><category><![CDATA[Tarlov Cyst Treatment]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[Tarlov Cyst Disease Research]]></category><category><![CDATA[Patient Stories]]></category><pubDate>Sat, 28 Jun 2025 17:32:24 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_93176c11cdaa46ab97b127313a5b15a2~mv2.jpg/v1/fit/w_800,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Rare but Real: A Pediatric Male Diagnosed With a Tarlov Cyst and Ehlers-Danlos Syndrome]]></title><description><![CDATA[Medical professionals must not rule out Tarlov Cysts simply because a patient is young, male, or has “too rare” a condition. The presence of Ehlers-Danlos Syndrome increases the risk of spinal meningeal cysts, but diagnosis requires suspicion, detailed imaging, and a willingness to look beyond the expected.]]></description><link>https://www.tarlovcystsociety.com/post/pediatric-male-diagnosed-with-a-tarlov-cyst</link><guid isPermaLink="false">68543e5201c622a34dc1741d</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Pediatric Stories]]></category><category><![CDATA[Patient Stories]]></category><category><![CDATA[Tarlov Cyst Disease Research]]></category><category><![CDATA[Diagnose Symptomatic Tarlov Cysts]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[Medical Practitioners]]></category><pubDate>Thu, 19 Jun 2025 17:16:23 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_5c4e84dd441a4b8caa738f1715d94bbf~mv2.jpg/v1/fit/w_800,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[New on the Tarlov Cyst Society Website: Tarlov Cyst Disease Supports]]></title><description><![CDATA[We’re proud to introduce the “Get Support” section on the Tarlov Cyst Society website—a centralized hub of information, resources, and tools designed to empower you with knowledge and guidance.]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cyst-disease-support</link><guid isPermaLink="false">6852ea9e05d47c18c46895de</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Self Advocacy]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[Society Updates]]></category><pubDate>Wed, 18 Jun 2025 16:58:45 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_5f20d948f05d40cd9ca5e189be0ca497~mv2.jpg/v1/fit/w_800,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Misdiagnosed and Dismissed: How One Australian Woman Discovered Her Tarlov Cyst Was the Cause of Her Symptoms]]></title><description><![CDATA[By Leanne Marks, Victoria, AustraliaPublished by the Tarlov Cyst Society Focus Keyword: Tarlov Cyst symptoms Meta Description: A Sudden...]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cyst-symptoms</link><guid isPermaLink="false">68504dc4355e04d349767fa1</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Self Advocacy]]></category><category><![CDATA[Patient Stories]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><pubDate>Mon, 16 Jun 2025 17:37:09 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_ab1d1dee0cba4c7799000c34c1afab51~mv2.jpg/v1/fit/w_800,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[When Systems Fail: Jodey Whiting’s Story and the Danger of Dismissing Tarlov Cyst Disease]]></title><description><![CDATA[Jodey’s diagnosis of an inoperable (according to the story) perineural cyst came in 2016—less than a year before her death. It contributed to escalating pain and disability, and yet there’s no indication that her condition was treated as the serious neurological disease that it is.]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cyst-disease</link><guid isPermaLink="false">684ece55653508bea4fe6135</guid><category><![CDATA[Patient Stories]]></category><category><![CDATA[Tarlov Cyst Disease Research]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><category><![CDATA[General Knowledge]]></category><pubDate>Sun, 15 Jun 2025 14:21:30 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_d3f8688a397b48c198f4833f7c95a467~mv2.png/v1/fit/w_851,h_315,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Understanding the Emotional Landscape of Tarlov Cyst Disease]]></title><description><![CDATA[Living with a rare disease often means struggling for validation. ]]></description><link>https://www.tarlovcystsociety.com/post/exploring-the-psychological-toll-of-living-with-tarlov-cyst-disease</link><guid isPermaLink="false">68332214b00ee36cfa1d169a</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Self Advocacy]]></category><category><![CDATA[Medical Practitioners]]></category><category><![CDATA[Tarlov Cyst Awareness]]></category><pubDate>Sun, 25 May 2025 14:39:24 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_8f620114365246d49be3bb03d1139c6f~mv2.jpg/v1/fit/w_800,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[The Tarlov Cyst Society is Now a Registered Charity]]></title><description><![CDATA[This achievement wouldn’t have been possible without the ongoing strength, vulnerability, and dedication of the Tarlov Cyst patient community. Your voices—and your stories—continue to guide this movement forward.]]></description><link>https://www.tarlovcystsociety.com/post/tarlov-cyst-society-is-now-a-registered-canadian-charity</link><guid isPermaLink="false">68313043905d5dd1ac0c6b7f</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Society Updates]]></category><pubDate>Sat, 24 May 2025 12:23:34 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_be4bd0830739439bb0b6cad8a69cb879~mv2.jpg/v1/fit/w_800,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[First Genetic Study in Spain Aims to Uncover the Genetic Causes of Tarlov Cyst Disease]]></title><description><![CDATA[For the first time in Spain, researchers are conducting a genetic study focused on Tarlov Cyst Disease, a debilitating and often misunderstood neurological condition.]]></description><link>https://www.tarlovcystsociety.com/post/first-genetic-study-in-spain-aims-to-uncover-the-genetic-causes-of-tarlov-cyst-disease</link><guid isPermaLink="false">682504bf4e915e51d966dc96</guid><category><![CDATA[General Knowledge]]></category><category><![CDATA[Tarlov Cyst Disease Research]]></category><pubDate>Wed, 14 May 2025 21:42:59 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_a0b9e97aea0a40308504599400c9ecda~mv2.jpg/v1/fit/w_800,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[More Than Just a Cyst: Understanding Comorbidities in Tarlov Cyst Disease]]></title><description><![CDATA[Living with Tarlov Cyst Disease: Why It's Crucial to Look Beyond the Cyst Tarlov Cyst Disease (TCD) is a complex spinal condition that...]]></description><link>https://www.tarlovcystsociety.com/post/more-than-just-a-cyst-understanding-comorbidities-in-tarlov-cyst-disease</link><guid isPermaLink="false">6817a36c80e2422fe51c1784</guid><pubDate>Mon, 05 May 2025 18:14:17 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_df5425afe7ee466fb810c77b3f53289d~mv2.jpg/v1/fit/w_800,h_1000,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item><item><title><![CDATA[Understanding the Role of Advocacy in Rare Health Conditions]]></title><description><![CDATA[Rare health conditions often face underrepresentation in the medical community and societal awareness. This void magnifies the importance...]]></description><link>https://www.tarlovcystsociety.com/post/understanding-the-role-of-advocacy-in-rare-health-conditions</link><guid isPermaLink="false">6813ce86f547f5de52609b65</guid><pubDate>Thu, 01 May 2025 20:24:36 GMT</pubDate><enclosure url="https://static.wixstatic.com/media/23e35c_02ef87ab8591464a990bf7636a73563b~mv2.png/v1/fit/w_1000,h_768,al_c,q_80/file.png" length="0" type="image/png"/><dc:creator></dc:creator></item></channel></rss>